Friday, June 8, 2018

Modified Diet

Tula had been getting these weird rashes on her face.


All of my kids have sensitive skin—they don’t burn in the sun, but their cheeks turn a bright lobster red from any amount of time outside. They have all (except Benjamin) had patches of eczema that come and go since they were babies, and we have had to be diligent about which sunscreens, soaps, lotions, and creams we use on them so it does not cause irritation. Tula’s occasional reaction was interesting, but not necessarily of note.


At first, I thought it was just teething rash. The other three would get a little contact dermatitis when they ate, so it could be that, too. I had learned that if you washed off their face and hands, it would pass after about a half hour or so.


Tula’s was more persistent though, and had the distinct white center indicitive of hives. Each time, it would get a little more wide spread—it started with just around her mouth, then blossomed out to her cheeks, around her eyes. The whites of her eyes turned red and she would scratch at them. Her nose would run, and she would sneeze and cough as her little nails raked paths across her skin.


I kept a food log and noticed when it happened:


Scrambled eggs.

Chocolate chip cookie.

Cheetos.






I had been off of dairy while nursing her because it caused such intense distress in her—as a new infant, she spent hours and hours screaming in the evenings until she fell asleep out of sheer exhaustion. We tried activated charcoal and medicine for acid reflux, but the only positive change happened when I finally cut out all dairy. It was missed, but worth it when our evenings started passing uneventfully.

Originally, my intention was only to nurse for the first six months. When that came and went, I decided to supplement until she was on more solid foods. At nine months, still getting the primary bulk of her nutrition through me, she was diagnosed with Type 1 Diabetes; nursing was such a comfort to her through that difficult time and through blood sugar crashes that I pushed back the timeline to a year.

One year, and then she would be officially done.

Around that time, my good friend brought me farm-fresh goats milk to try. It felt like a safe bet. Many people can do goats milk when cow milk does not treat them right. I gave T a bottle of it, which she sucked down, smacking her lips and saying “mmmm! Ahh! Mmmm!”




I felt like I saw the light at the end of the tunnel. This baby would not be nursing forever.

Turning around to check on her, she has the most widespread and severe rash she’d had yet.

Alarming as it was. she wasn’t wheezing, so I called the nurse to get dosing on Benadryl and made a note to bring it up a Tula’s one year check-up in a few weeks. From there, we got a referral to an allergist here in town for testing.

Using a back-scratch year, allergist determined Tula was allergic to eggs, milk protein, and soy. We will have to undergo further testing in the future, but we have to eliminate all three from her diet for the time being, including their presence in baked goods.

Which meant that I, who (despite my best intentions) is still nursing her several times a day, would have to modify my already limited diet as well.

I get questioned on my vegetarianism a lot, particularly in this state where it seems to be a lifestyle incomprehensible bordering on deviant.

March 2015 was when I stopped eating meat. Starting out, I was classified as ovalactopescatarian because I still ate eggs, dairy, and fish, but as of this actual post I am functionally vegan.

It started out as curiosity more than anything else. I wanted to know:

Would this help me with my migraines?

I vividly remember the first time I experienced a migraine. I was about seven years old, in the second grade. Mom sent me to lay down on her bed at the back of the house, away from the noise. The sink in the master bathroom had a leak that would drip, drip, drip. Each little droplet of water that splashed in the basin felt like it landed on my temple like a lead bullet, drilling deeper and deeper into my skull. My vision blurred a sharp contrast between the light and the shadows. Everything looked like it was vibrating and pulsating, this nightmare sequence of the environment advancing menacingly toward me and dancing away. At some point I vomited, but I was in too much pain to drag myself away. I lay there for hours, wishing unconsciousness would take me.

I was Ben’s age.

It never ceases to amaze me how long people will accept the unacceptable because we grow accustomed to it. Michael accepted being ill every time he ate shrimp, taking it at face value as the toll paid for that particular indulgence. I lived with weekly migraines for decades as just another unavoidably unpleasant facet of life.

In the same way, I tolerated extended periods of anemia and the associated symptoms: being chilled down to the bone and trembling, lightheadedness, weakness, lethargy. Each time it was rediscovered, I would be re-prescribed iron tablets and iron-rich foods in the hope that the unpleasant side effects of those were worth enduring for more stable red blood counts counts.

These were things I adapted to. I wasn’t happy about them, but after years of ineffectual treatments that seemed to make the situation worse, I acquiesced to these as less desirable facets of how my body functioned. Resigned, I stopped looking for a solution--I lived my life around migraines and intermittent anemia, focusing on treating the symptoms instead of looking for the underlying cause.

The vegetarianism started out as a whim based on the question: could this possibly have an impact on my migraines?

For the first two months, I felt kind of ridiculous and gross. I was bloated a lot of the time. Eating out at restaurants became tedious, particularly Mexican food that uses lard in beans and stocks in rice. People were puzzled by my decision, and wanted to be supportive but they genuinely didn’t know how. They wanted to know to what extent was I limiting myself? Was this just cutting out red meats, but still eating fish and poultry? Would I eat dishes made with chicken stock? Was it an ethical thing?

Why would anyone want to stop eating meat?

One thing that sincerely bolstered me through those early days when I was questioning myself and feeling ridiculous was my cousin, Sean. He, separately and concurrently, also decided to modify his diet. His was more based on unethical farming practices and cruelty to animals, but it encouraged me to keep going because he was persevering.

As my body adjusted to the increase in fiber and grew accustomed to this new fuel regimen, I started noticing...I was feeling better. It had been months since I had a migraine or a cluster headache, and all my blood work showed a healthy amount of iron. My hair, teeth, nails, and skin were healthier, shinier, stronger. My face lost the post-pregnancy puffiness and my weight, which for years had wildly fluctuated, finally stabilized. The amount of sleep I was getting did not change but I had so much more energy, rarely needing naps to get through the day. I even started running, a wild deviation from my norm, and found that I actually quite liked it.

It seemed my gambit had paid off and had exceeded my expectations, improving my health and quality of life in ways I had not anticipated.

The biggest, and by far most welcome change, was the lessened symptoms of my endometriosis.

Some women experience endometriosis to a certain extent after cesarean sections; it is a condition that causes endometrial tissue to grow in places it should not, causing pain. My particular brand ranged from very uncomfortable to downright distressing. Difficult to diagnose, the first time I had a name for the agony I was experiencing I was sitting on the floor of the doctor’s office, curled in on myself and hunched over the trashcan as they helpfully suggested, “have you tried ibuprofen and a heating pad?” as though I was 13 years old and first experiencing womanhood.

This...this was unacceptable. But after a barage of physicians that treated me as though I was exaggerating the amount of pain I was in, after ineffectual treatments ranging from oral contraceptives to injections to minor surgery that provided temporary tempering at best, it became an unextractable part of my life.

When I altered my diet, all of that--the visits to emergency rooms and prescription painkillers and knowing I would be completely out of commission three days out of every month...all of it just stopped.

I kept waiting for it to come back, flare back up, more ferocious than ever. It never did, and my new modified diet saw me through by far the healthiest pregnancy I ever had.

These unacceptable things I had been living with for so long were no longer a part of my life.

Tula’s allergies certainly further limit the scope of what I in particular can eat. I am making a clean sweep--all groceries have to be things that Tula can eat to avoid possible cross-contamination or accidental contact. The soy was the hardest part, surprisingly. It is in a lot of preserved foods, so we have primarily shifted our focus to whole foods. We are very thankful that it does not include gluten or nuts as then we would simply starve. A typical meal day’s meal plan might look like this:


Breakfast: Homemade bread with black currant jam, diced ham

Mid-morning snack: Whole grain sweet potato muffins

Lunch: Whole wheat spaghetti noodles with garlic mushroom marinara, zucchini

Snack: Vegan banana coconut “ice cream”

Dinner: Pork fajita rice bowls with cilantro lime rice, shredded red cabbage, avocado, and radish

For the meat portions, I substitute additional veggies, beans, or mushrooms. Meal prep time has gone way up, which is somewhat tiresome, but because I have the kids home with me I can use it as teaching time and have them help, which is a lot of fun for them. I also like that we are eating smaller meals more often because it is better for everyone and I have had less fussing about residual hunger.

Before we talked with the allergist, Tula’s blood sugar was completely unpredictable. It felt like we couldn’t win because she was all over the map. Since making these...I hesitate to call them “simple” changes because I have struggled navigating it thus far, but since implementing these changes, Tula has become much more stable--with the same amount of insulin, we are seeing considerably fewer highs, and less frequent or devastating lows.

And wouldn’t you know it, the rashes stopped appearing on her face.



Food sometimes becomes such an obstacle for people because we have been blessed to take so much joy in it. God made food to be pleasurable and we have been blessed with an abundance on which to avail ourselves, but that sometimes obscures the primary function of food--as fuel, intricately and intelligently designed with rich nutrients to help our bodies to grow and to flourish and to thrive.

Not having to deal with all that nonsense I used to--the migraines, the anemia, the endometriosis…

That has been worth anything else I may have given up.
--Andie

No comments:

Post a Comment