Medicated

I couldn’t think, couldn’t sing, couldn’t write.

It had stolen my ability to be Andie.

I have suffered from depression in one form or another for over ten years. First arriving on the scene as postpartum with the arrival of my strawberried Emerald, it took root in our difficult life circumstances, fed on my up-and-down hormones from four pregnancies, and flourished in autism and diabetes.


With tiny baby Emerald, I should have been suspicious when I told Michael, “I’ve read that some mothers don’t bond with their babies right away, so it’s okay if I don’t love it yet,” by his response:


“She’s already here; can you not call her ‘it’?”


From the thickets, it’s kind of hard to see though. Your body is telling you that you indeed feel this way so obviously you are supposed to feel this way—if it wasn’t a logical reaction, you wouldn’t be having it. It isn’t until you separate yourself through the lens of someone else’s perspective that you start to realize the script is all wrong—this isn’t how your story is supposed to play out.

The analogy that is most often referenced is getting glasses for the first time: you didn’t realize how blurry everything was until it came into focus.


After Benjamin was born, I was sitting at my general practitioner’s, Dr Andy, for my 25 year annual physical. It was my first appointment with him; I was referred by my obstetrician because they were golfing buddies. Michael wanted me to bring up my mood swings in response to an incident we had earlier in the week: We were running behind getting ready to go to church, so I got upset and kicked the high chair across the room. Which apparently was the wrong reaction.


As I sat there, feeling ridiculous because I had a couple of bad days and Dr Google over here was diagnosing me with depression, and the doctor is going to think I’m an idiot, why am I even here, this is stupid, stupid. Tears are in my eyes and my throat is sore because I am not going to cry again and make a fool of myself, and I’m just so, so angry and I don’t know why. I am absolutely furious, fuming, sitting there on the examination table all by myself and there is no reason.


This isn’t what depression was advertised as. You envision sadness, not anger. Thoughts of suicide. I didn’t want to kill myself. That would have taken way more energy than I had available, and I couldn’t see hurting myself. At night when I closed my eyes for the briefest moment, I would wish I wouldn’t wake up. I didn’t want to die, but living was so hard, and death sounded so...peaceful.

Dr Andy explained that depression wasn’t just sadness; it was all the emotions, right under the skin, ready to fly out before we could stop them.

He prescribed Celexa (citalopram) for depression, Elavil (amitriptyline) for anxiety.

The first week, I was euphoric. Not because the medicine had such a profound impact on me, but because I was so optimistic—we had identified the problem and there was a solution! I wasn’t a cold, hateful mother; it was a biological issue. The medicine was going to help, I could feel it in my bones.

The second and third week felt like I had been cruising down the highway going 80 miles per hour and someone had thrown the parking brake. Instead of my emotions feeling right under my skin, it felt like I carried them overflowing in my arms—in any given situation, I had to frantically sort through and figure out what exactly I was supposed to be feeling, experiencing every emotion at once in a confused and upsetting state.

After about a month and a half, everything evened out and we got on kind of a system. Weekdays, I’d put Gabe on the bus to PPCD, drop Emerald off at preschool, and go home to put baby Benjamin down for nap. While he was sleeping, I would take my two little “happy” pills and hope nobody needed me for an hour because I would be too dizzy to drive. I’d lay on the couch feeling like I was rolling somersaults; then it would pass and the rest of the day would be pleasantly tepid.

It felt like the colors had been scaled down on my life. I was no longer seeing red furious or blue sadness, but I wasn’t laughing and joyous either.

After hurting for so long, the mediocrity of okay days was paradise. 

I stayed on the two meds for a couple of years until I moved to Abilene and got a new doctor, one that reacted with horror when he saw the amount of serotonin-affecting medicine I was on. He had me drop the Elavil and cut my Celexa dose by half.

The new regimen lasted about a year. During that time, I slept whenever I could get away with it. I was a perfectly pleasant (for the most part) individual, perpetually living between nap times. What drew me up short, what made me question the medicine I was on, was when someone asked me what I did for fun and I realized:

I can’t name one thing I enjoy.

I’m a person of superlatives—I have a favorite in every category, just go on and ask me. But during that time, I couldn’t think of anything that brought me pleasure. It felt like I was doing things because I had done them before, things like watching cooking shows and reading, but there was no satisfaction, no emotional connection, just an automated response.

With depression, my chest ached remembering things I had once enjoyed, longing to recapture that experience. I’d get a plate of TGIF hot wings—my favorite, with the crispy outside and the buttery, spicy sauce—and will it to taste as good as I remembered, but it never did. I’d get dressed up and go out on dates but no matter how much I put on my “happy” costume, I couldn’t make my insides reflect out.

The treatment, the antidepressant, though...it felt like the candle inside me had been blown out.

If my favorite show was on, I wouldn’t look up once until the credits were rolling and realize I hadn’t heard a word. I would sit down my favorite meal and taste nothing before the food was gone.

My mind felt like a yawning, wind-filled cavern where placidity reigned supreme. I couldn’t think. Couldn’t sing. Couldn’t write.

Antidepressants had stolen my ability to be Andie. 

For a brief while, I switched to Wellbutrin to see if it was the specific med that was causing the issue, but it was an emotional cataclysm and I couldn’t finish the initial 6 week course. I talked to my doctor again, noting that my youngest child was then four years old, so the underlying issue—postpartum depression—had likely passed its course. I had ridden the wave of celexa through the last storm, but now it was time for the clouds to part and let us evaluate what was left to work with.

It was hard to wean me off because I was on such a low dose to begin with, but gradually I got to the point that my system was clearing out. There was a significant period of adjustment, a time in which Michael and my mother asked repeatedly if I thought this was a wise choice (with the heavy implication that they disagreed with this course of action). To ease the transition, I started going to counseling to learn coping mechanisms.

Three main strategies emerged successfully for me:

The first was my lists. I made a list of the minimum I was allowed to get done each day. Eat healthy, Drink Water, Do something enjoyable. If I accomplished nothing else that day, then I could say I tried to take care of myself, which was a start.

The second was taking time for myself. Twice a day—once before Michael left for work and the second after dinner—I would go for a run. It was 90 plus degree weather and I loved it because I could blast my heavy metal music and not talk to anyone or socialize with anyone for a half an hour or more. It was just me.


The last was my “Thought Vomit” journal.

My counselor had recommended a mindfulness program. He said thoughts are like leaves in the stream; we can watch them pass by; we acknowledge they are there, we hear them, and we let them pass. If we don’t hear the thoughts, they’ll just keep repeating until we do, so acknowledge them.

My homework every week was to write down what I was thinking for 15 minutes every day. Just write. It’s a different process to write than to speak or to think; it feels so much more actionable. I would find a spot, usually not long before bed, and I would write down everything I was thinking—every emotion I was feeling, every song I had stuck in my head, every complaint and every praise and everything, like a grand purge until there was nothing left.

Emptiness not like the one caused by Celexa, which felt like a desert with friends hiding where I could not see them, but an oasis where nothing was happening, no one was moving, and I could just be at peace.

I spent a year getting reacquainted with myself, remembering what brought me joy and satisfaction outside of being a wife and a mother. Lemonheads, Tim Burton movies, the dark and macabre, but also sunlight and dancing and Jude Deveraux. I liked things that were powerful evocators, things that demanded a reaction. Joy was something I had missed for so long and wanted to spend as much time in as possible, but I rediscovered things I did not like as well: loud noises, big crowds, being late, messes. It reminded me of what it took to take care of myself.

Toward the end of my pregnancy with Tula, the depression took hold again. I was snapping at the kids, taking four baths a day, just waiting. Waiting to feel better. Waiting for happiness to come back. Three weeks postpartum, having cried every day because of change in routine or unexpected events or delays, I started on a low dose of Zoloft (Setraline). I was dizzy at first, but then it just ran quietly in the background. It felt like it was gently nudging me away from the darker thoughts, away from spiraling into a panic attacks. It was a little platform that held my emotions up until I could take over again on my own.

Sometimes I felt weak or foolish for needing medicine, for not being able to handle it. I felt like I was supposed to be coping better.

When I was feeling kinder, I knew that just as Gabriel took medicine to control the symptoms of his autism and Emerald took insulin to manage her diabetes, I needed support, too. It wasn’t a matter of my ability, but a physiological disruption that had to be corrected. Taking action was coping. 

I still have bad days. Thursday was a bad day. Gabriel ruined my coffee, drank the back-up; Emerald and Benjamin would not stop fighting and I burned only dinner to complete inedibility. We were supposed to play a game as a family but my dour mood had soured it for everybody. That day, I didn’t cope so well. Spending that time learning how to care for myself, satiate my emotional needs, taught me though: it is okay to have a bad day, because tomorrow will be better.

I know how to make it better.

—Andie

The Price of Being Different

I hate spending money.

It is the possibility I am reluctant to part with. In my pocket, $20 could be a pack of diapers or a half a tank of gas or a couple of groceries. Once you spend it, all the possibility dissipates. Since I was little, I have preferred saving to preserve option to spending. Spending feels so final, so...decisive.


The topic of money is vulgar to me. Don’t like to talk about it, don’t like to think about it. Do not care for the fact that it is an unavoidable, definitively adult undertaking. It is kind of like toilet paper to me--everybody uses it, each in their own way, but please let’s not discuss the particulars, shall we?


Money is distasteful. On “Cutthroat Kitchen” when the contestants are first handed the cash, what do they always do? They raise it to their face and inhale that horrid smell. The smell of books, new or old, now that is intoxicating--it is the smell of adventure, prose, romance. The smell of money is sweat and butts and squandered potential.


So, if I dislike it so much, why talk about it?


It is one of the things people are most curious about. Probably because it is a borderline taboo subject--it would be impolite to inquire about someone else’s finances, in any scenario. We know the statistics though. Raising a child with special needs or chronic medical concerns is hair-raisingly expensive and we have three. I have panic attacks when confronted with it because need is where possibility and decision collide--inaction is rarely an option.


We have been incredibly blessed. At exactly the right time, the Lord has provided for us, through the kindness of others or an open door, talking to the right person at the right time that points us in the right direction. He has guided us through.


It is a substantial consideration on our part, whether I like it or not, a determining factor in a lot of our decisions. I figured I would offer you a glimpse of the inner workings here, some of the elements at play.


We are a single income family. I have been unable to work, largely due to Gabriel but also because of Benjamin and more recently, Tula. Daycare runs about $35 a day for a decent one, but in this town, the waiting lists are substantial for any reputable child care in town. It amounts to $500-$600 a month, or the bulk of anything I would be able to bring home. Jobs that have the same hours as school can be obtained, but I have to be available to pick up kids afterward or pay for after school care, which would deplete the rest of whatever I could earn. There are no after school programs that accept children with disabilities; there are no after school programs that can manage the girls’ diabetes.








If I could work, Emerald and Tula have to have doctor’s visits every three months; Gabriel has to have doctor’s visits every three months in Lubbock. Which accounts for at least three missed days of work--one to travel to Lubbock, one of the doctor’s appointment, one for the girls if I take them both at the same time--every three months. Those are specialists, they still have to see their regular pediatrician, and like any child they will get sick occasionally.


Gabriel’s school calls an average of two to three times a week for me to come up there. Children with autism often present with chronic gastrointestinal issues and Gabe is not exempt, so often he has had a bad poop and I have to bring him home to shower and return--sometimes it is a blowout, sometimes he gets into his diaper and smears it. Disgusting, but it is something we have to deal with. Other reasons they call are because he is agitated and not calming himself down, he is being aggressive, he is having issues with his clothes or shoes and needs me to deliver new ones, he is falling asleep and cannot keep himself awake, or because he is “just not acting like himself”. Between me and Michael, my hours off are quantifiably worth less than his, so I end up taking off again and again.


Let’s establish--that is just out of the ordinary stuff, not accounting for school trips or class parties and other parental involvement activities, most of which I am still unable to attend because siblings are not allowed (after all, I am of limited help when my arms and attention are full of baby).

We’ll do Diabetes first because I am holding Tula so it makes logical sense to me.


Insurance will cover 100 test strips--the little strips that we use to monitor the girls’ blood glucose levels--a month. Emerald has to test her sugar a minimum of four times a day, six on PE days, for a total of around 140 test strips used a month. Tula has to test her sugar around 6 times a day, for a total of 180. That is if we never get an error reading or they never have high or low blood sugar and never get sick--those all call for additional strips. The test strips we buy--the cheapest on the market--are $0.18 each, for about $40 out of pocket a month after insurance covers $60. Glucometer, the meter that reads the blood sugar, can vary. The ones we use at home the pharmacy actually gave us for free because insurance won’t cover those particular test strips (Glucocard). Insurance prefers the Tru Metrix test strips and meter, so we have two meters for each of the girls at home--one that uses the test strips insurance covers and one that uses the less expensive test strips we have to pay for out of pocket.


To complicate matters, Emerald actually has a THIRD glucometer at school--ReliOn Prime--that we provide test strips for. It is a cheap one, only costing $15 so it can be replaced as needs be.


Tula also has a third monitor, but that one is a combination Ketone and Glucose monitor that we only use for the former purpose. Whenever the girls’ blood sugar is over 300 or whenever they are getting sick, we have to check for ketones in their blood so they do not go back into ketoacidosis. Emerald has strips that you check her urine with; Tula has one that checks her blood. Neither of those are covered by insurance. Tula’s NovaMax Test Strips are around $2 a piece, but will last a few weeks because she doesn’t go high very often. Emerald’s are considerably cheaper at about $0.15 each, but she has to be tested more frequently. Combined, it is about $37 a month.


Lancets are cheap--we use them to poke fingers and toes to draw little bits of blood for testing blood sugar. They run about like $5 for a box, but insurance covers those and they last forever. Alcohol swabs run out quickly and are not covered, $2 for 100 for a total of $8 a month. We use those to clean before we prick or poke and wipe off the top of the insulin. Diabetes logbooks were $5 each and last the whole year. Emergency sugar supplies are like packets of sugar or honey that we have leftover if we eat out, but we could also put dum dums in there. Negligible stuff. Pen needles are the mini needles we put on insulin pens; they are $9 a box of 50 generic. We have to buy four of those a month--insurance covers $36, we cover $36.


Syringes, which we have to use for Teeny Tula’s half dosages, cost $30 (covered) a month.


Insulin gets tricky. Medicinal insulin has been around since the 1900s, so you’d think it would cost less. Generic will actually raise your insulin resistence, meaning you will need more and more over time. We invest in the better stuff. Both girls have Lantus Solostar pens, which are $280 a box. A box has six pens, each with 100 units of insulin. One box will last Emerald a little over two months. Tula has a vial of 100 units that costs $190; it will last her about a month.


Insulin is only good out of the fridge or open for a month so we have to toss it after that or it can jack with their sugars.








That is their long acting “basal” insulin. The also have bolus insulin--Emerald has Novalog Flexpens that are $600 for a box of six pens. Those will last us about a month because she has to take it more frequently, after each meal and for correction. Tula is on Humalog pen that is about $550, but because she eats so very little carbs and only gets the tiniest little doses, it will last her a while.


They both have to have the glucagon emergency kit in case they crash. Most families do not have to use it, but you always have to have it on hand and replace it once a year. It is sort of like an epipen. They are $300 apiece. Zofran is a medicine that will prevent them from vomitting when they are sick because it could cause them to crash which would be dangerous; we get a supply of that a year for $250.


So just for medicine and supplies, most of which is covered (thankfully) under our insurance, runs us about $24,000 a year for both girls. We are personally responsible for about $1500 of that, if insurance is playing nicely and there are no issues.


Emerald’s insurance lapsed last year so we had to pay for it out of pocket for a while; that was kind of killer. I thanked God every day that we were able to do that.


Visits to the endocrinologist happens for each of them every three months; we have no copay, but the visit would be around $120 because they do discounts if you pay up front. That adds up to $960 a year for both. Each time they go, they also have to run full blood work including a1c, totalling around $1000 or $8000 for the year. We meet with the registered dietitian at each visit ($100 an hour, times two for each girl, times four visits a year for a total of $800 a year). If there are no hospitalizations and we keep up with our routine office visits, that is just shy of $10,000 a year.


I don’t want to get into hospitalizations because YIKES and because I am sincerely hoping none of that happens. Normally, we will make an emergency room run once a year because we can’t get things under control and they need fluids or if we run out of insulin before insurance is willing to cover it again. Depending on what needs to be done, an ER visit will set us back about $1200. I also won’t go into things we are not currently doing, like special camps or insulin pumps or continuous glucose monitors because while I could look up the information on that, it would be meaningless--they do not currently affect us.


Whew. That was a bit of an odyssey. Catching my breath before I move on to Autism.


Alright, took a quick Facebook break and now I am back.


Autism Speaks estimates it takes around $60,000 a year to raise a child with autism; $90,000 if the individual also has an intellectual disability. That is roughly four times higher than the cost of raising a neurotypical child.

I did the math after a friend of friend asked me. All things considered, Gabriel costs $46,000 a year more than Benjamin. That is counting incontinent supplies, medication, specialists, therapists, personal care services. Breakdown is something like this:


-Personal Care Assistant: $1000/month ($12,000/year)


-Incontinent Supplies (diapers, wipes, changing pads): 200/month (2400/year)


-Medication (clonidine, risperidone, hydroxyzine): 450/month (5400/year)


-Therapy (speech, occupational, physical): $28,800/year*

*This one actually went down substantially because we cut back—insurance doesn’t cover Applied Behavior Analysis so we had to pay out of pocket for each session; got too costly and we had to quit. We also scaled back, dropped PT at home, decreased at PT/OT school so that he could have a little break. It was getting to be a lot.


-iPad maintenance and repair: $130/few times a year. Because it’s his communication device, we have kept it available, but that means it has had a few accidents. He ruins cases, takes it into the bath with him, leaves it outside, or gets mad and cracks the screen. Currently, he’s taking a short break from screens because he has annoyed us too greatly by being uncareful. It also covers new chargers.


-Specialists: $250/visit($1000/year) he see a developmental pediatrician, which we have to travel to Lubbock for, so tack on another $40 in gas.


There are other costs like locks for the fridge and pantry, bolts for the front door, back door, and our bedroom door. We get items to work with him between therapy—trampoline, swing set, weighted blanket, compression garments, sensory brushes, hammock, exercise ball, privacy pop, noise canceling headphones. Those vary in price from $10 to a few hundred. We were doing horse therapy for a while, but have taken a break. That was at no cost.


All of that adds up to...right under $50,000 annually for Gabe, before calculating for lost wages. As he gets older, the price will increase exponentially to include a nurse or residential living (though we hope he wants to stay with us), transportation, and other expenses.


I try not to think about all of this, but when it comes together…

Yuck. No wonder I don’t like thinking about money.


When I do think about it...it’s a tangible, definable way to express how God has cared for us. A lot of families of special kids go bankrupt trying to handle it all; though we rarely have excess, we always have what we need when we need it. I think that is such a beautiful thing. I am very thankful for it, because it once again opens my life up to possibility.





—Andie